I am the mother of a 4 year old who is waiting for a heart transplant. Life has been so tough since Evies diagnosis at 4 months old but her strength and joy has helped us so much. In February 2023, our journey for a new heart began and Evie has been waiting in hospital ever since. We have received fantastic support from Red Sky Foundation from help with travel costs, to a respite break and also support in the form of having a new friend to talk to about this journey. Sergio has been fantastic during all of this and constantly asks if there is anything more he can do. He is always trying to figure out new ways of support which is so unique from a charity to speak directly to the people who need the support most.’

– Chloe Lavan, Evie’s Mum.